Jeune Syndrome Foundation

Jeune Syndrome is a genetic condition affecting 1 in 150,000 people in the UK alone. Therefore, it is not something that is easily diagnosed at hospitals or by GP’s. Valerie Kiln-Barfoot decided to set up the Jeune Syndrome Foundation in 2012 to try and raise awareness about the syndrome and to bring those living with Jeunes together.
She required a website to start with strong SEO to make sure people could find the site which is full of information about Jeune Syndrome and has accounts from people living with it.

Launch Project

See it Live!